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New NY State Law on Information for Women Undergoing Mastectomy

A few days ago, NY State Gov­ernor Paterson quietly signed a new public health law* on infor­mation and access to breast recon­structive surgery. From the details pro­vided on my state’s Open Leg­is­lation website, it seems this took place on August 13.

The purpose of the new law is to assure that all women under­going mas­tectomy in NY are told about recon­structive surgery options and that insurance will cover those addi­tional procedures.

What’s curious are two things — first, why so little cov­erage of this event? It is end-​​of-​​summer, I suppose.

But maybe editors and people like me who are edu­cated in med­icine and read news­papers are out-​​of-​​touch with the fact that many women who have breast cancer — over 200,000 each year in the U.S. — still don’t really know about breast recon­struction during or after cancer treatment. In my com­munity, people read books and ask mul­tiple doctors in second and third opinion before deciding whether to undergo a trans-​​flap or have implants inserted and then, once electing for implants, attempt a careful review the not-​​so-​​current lit­er­ature on sil­icone vs. saline…

The reality is that many women, par­tic­u­larly poor women without news­papers or internet access in their homes, don’t know about any of this. They don’t know their insurance covers pretty much all of these options, by law. Now they will, or should as of Jan 1, 2011. Good.

The other curiosity is that a Mon­te­fiore Medical Center–affil­iated plastic and recon­structive surgeon is said to have authored this bill, which was spon­sored by State Senator Ruth Hassell-​​Thompson. The doctor’s inten­tions were surely good; he advo­cated its passage based on the sad case of a single mom who, after under­going mas­tectomy and seeing several physi­cians, still wasn’t aware that she might undergo breast recon­struction. Nonetheless, it’s not sur­prising that a plastic surgeon in the Bronx cares about this legislation.

There is a dark side to this, unfor­tu­nately. Even among the women with good insurance and pur­portedly top docs, the results of recon­structive breast surgery are some­times dev­as­tating to the women who undergo these pro­ce­dures. These are no boob-​​jobs, and there’s wide­spread mis­con­ception about that. So I hope the law, also, might even­tually protect women from botched attempts at recon­struction, an under-​​reported problem that might also be newsworthy.

*addendum — first link above adjusted because the pre­vious url, http://​www​.cnbc​.com/​i​d​/​3​8​7​4​3​477 is no longer available, ES 2/​14/​11

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2 comments to New NY State Law on Information for Women Undergoing Mastectomy

  • Susan O. Cassidy, MD, JD

    Hi Elaine,
    I enjoyed your com­ments regarding the new NYS law requiring coun­seling for women prior to mas­tectomy for breast cancer. I applaud the passage of the federal leg­is­lation man­dating breast recon­struction surgery, but think that women also need to have the option for a custom fab­ri­cated pros­thetic breast if they do not want or cannot have sur­gical reconstruction.

    There are cur­rently bills pending in the Senate S 3255 and House H.R. 5447 that would require Medicare reim­bursement for a custom breast pros­theses, as a woman’s breast is the only body part for which Medicare refuses to cover a custom fab­ri­cated pros­thetic replacement. It is unfor­tunate that the NYS law requiring coun­seling about recon­structive surgery does not require that women be given infor­mation about the avail­ability of custom breast pros­theses as part of informed consent. Thanks for your efforts!! Best Regards,
    Susan

  • I read with great interest your question of how come this bill was signed and so low key-​​I am the exec­utive director of The Hewlett House which is a Breast and all cancer resource center. We have many support groups and I run a double mas­tectomy group-​​I would like to contact Thompson and see who else was on the bill and find out why there was no press conference–

    thak you

    geri barish

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