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Annals of Pink | cancer awareness | Life

Trending Facebook Group for a Beautiful and Bald Barbie Doll

cancer Barbie from Facebook

Before Christmas last month, a lym­phoma patient and a leukemia patient’s mother con­nected about a “cancer Barbie” idea. They set up a Beau­tiful and Bald Barbie Facebook page, and it’s growing steadily.

Several tweets yes­terday alerted me to this trending story. The idea is to pressure Mattel, Barbie’s manufacturer, to provide a model that kids getting chemo can relate to. According to USA Today, as of a few days ago the toy company hadn’t responded to the group’s request.

Not sur­pris­ingly, a par­allel Facebook group calling for a Bald and Brave GI Joe has surfaced.

I’m not sure what to make of all this. Should there be limits to cancer awareness campaigns? Then again, I suppose if a child has cancer, or a sibling has cancer, this kind of doll could be instructive and emo­tionally helpful.

—-

Related Posts:New Math in a Digital World: Impli­ca­tions for Patients?Vis­iting the Scar Project Exhibit­Taking Care of Yourself When Someone You Love is IllA Jewish Mother is Glad to See Eisenberg and Zuckerberg Getting Along on TV October 13 Would Be National Metastatic Breast Cancer Awareness Day

Fitness | Nutrition | Patient-Doctor Relationship

Weight Loss Strategies - What Should Doctors Say to Patients?

Yesterday’s Times offered two dis­tinct per­spec­tives on weight loss. One, a detailed feature on gastric surgery by Anemona Har­to­collis, details the plight of a young obese woman who opts for Lap-​​​​band surgery. In this pro­cedure, sur­geons wrap a con­stricting band of sil­icone around the stomach so that patients will feel full upon eating less food than they might oth­erwise. Allergan, the company that man­u­fac­tures the device, admits to these com­pli­ca­tions on its website.

The other, a dis­cussion of res­o­lu­tions and will-​​​​power by John Tierney, con­siders strategies for sticking to diets, exercise reg­imens and other good inten­tions for the new year. Within this piece lies a dis­tracting story of an obese (375 pound) hedge fund manager whose gastric band failed to keep his appetite in check. When he landed a project in Las Vegas and feared regaining weight, he aimed high – to lose 100 pounds, out­fitted his hotel suite with a gym, and hired a per­sonal trainer to stay

See more Weight Loss Strategies — What Should Doctors Say to Patients?

Fitness | health care delivery | Life | Magazine | Nutrition | Public Health

A Healthy New Year’s Resolution with a Social Twist

The December issue of Wired Mag­azine pro­files David Kirchhoff, CEO of Weight Watchers, in a story on new ways to measure calories and food. It’s an inter­esting piece, with several points worth con­tem­plating at the start of the year.

Kirchhoff, who gained some 70 pounds in his years after high school, writes a blog about the ups and downs of his physical self. When he first came to Weight Watchers, it was a regular points-​​​​minded par­tic­ipant. Now, as a fit CEO, he’s changed the plan. In December 2010, the company adjusted its algo­rithm for counting points. Among the revi­sions, a banana and other fibrous fruits are rel­a­tively encouraged rel­ative to other, less nutri­tious foods with similar amounts of calories.

The two main points I took away from the Wired story by Jeffrey O’Brien, sup­ple­mented by reading of his and sources are these:

1. The effec­tiveness of Weight Watchers derives largely from its method of peer-​​​​to-​​​​peer support.

Earlier this

See more A Healthy New Year’s Res­o­lution with a Social Twist

from the author | Life | life as a writer

Going Traveling, Happy End-Of-December!

palm tree and sun

Dear Readers,

Your author will be trav­eling soon to a mys­te­rious place, some­where south of NYC. Before departing, she needs com­plete some ordinary tasks like errands, paperwork and packing. So she is signing off, until January.

Have a great holiday if you cel­e­brate, and happy new year to all!

ES

Related Posts:Cel­e­brating a Hol­i­dayEnd of Summer Blog-​​​​BreakMed-​​​​Blog Grand Rounds Takes a Virtual TourThe Traveler’s Dilem­naS­taying Healthy in Hot Summer Travel

language | life as a writer | Medical News | Oncology (cancer)

Noting the Death of Christopher Hitchens from Esophageal Cancer

The author is sad­dened to learn that Christopher Hitchens died late yes­terday evening at the age of 62, roughly a year and a half after receiving a diag­nosis of esophageal cancer. He was a pro­lific and artic­ulate man; I respected him for his words.

His essays on the lan­guage and cancer might be of par­ticular interest to some readers of this blog.

The NCI reports there are some 17,000 new cases of esophageal cancer in North American each year; it’s not a common tumor, and most cases arise in men. The annual number of deaths from esophageal cancer approaches 15,000 in the U.S. These numbers are telling: it’s not an easy disease to have, or to treat.

——

Related Posts:A Good Outcome from Celebrity Chef Paula Deen’s Message about Diabetes?‘Cutting For Stone,’ and Con­sid­ering the Expe­rience of Prac­ticing Med­i­cin­eMagic Johnson is Alive 20 Years after Announcing He Had HIVCon­sid­ering Steve Jobs, Medical Diag­noses and Pri­vacyA Website About Illness In Celebrities and Other Public Figures

Blogs | Communication | Life as a Doctor | Patient-Doctor Relationship | Social Media

Why Should Physicians Blog or Use Twitter?

Is a question I ask myself almost every day. When I started this blog, it was partly a response to what I per­ceived an unbal­anced attack on the value of breast cancer screening by the main­stream news outlets. Why it’s con­tinued is, mainly, that I find it lib­er­ating and, in a strange way, fun. As I’m no longer prac­ticing, this wide-​​​​open world of shared facts, some ques­tionable, and new ideas keeps me alert and, maybe, in-​​​​touch.

Today several physi­cians tell of the ben­efits of social media for physi­cians. One post by my col­league Kevin MD is titled Bury Bad Doctor Reviews With a strong Social Media Presence. Kevin has, pre­vi­ously and else­where, described the potential value of blogs that encourage nuanced dis­cussion of health care news. What he reveals, today, is that blogs can be a way for doctors to put forward a pos­itive image of them­selves and their prac­tices. Closer to home, ortho­pedist Howard J. Luks, MD writes to the

See more Why Should Physi­cians Blog or Use Twitter?

Empowered Patient | health care delivery | Health IT | Life as a Patient

A Good Personal Health Record is Hard to Find

Over the weekend I developed another bout of diver­ti­c­ulitis. Did the usual: fluids, antibi­otics, rest, avoided going to the ER, can­celled travel plans.

One of my doctors asked a very simple question: is this hap­pening more fre­quently? The answer, we both knew, was yes. But I don’t have a Per­sonal Health Record (PHR) that in prin­ciple, through a few clicks, would give a time-​​​​frame graph of the bouts and severity of the episodes over the past several years.

The last time this hap­pened, and the time before that, I thought I’d finally start a PHR. Like most com­pulsive patients, I keep records about my health. In the folder in my closet in a cheap old-​​​​fashioned filing box, the kind with a handled top that flips open, I’ve got an EKG from 15 years ago, an OR report from my spine surgery, copies of lab results that the ordering physi­cians chose to send me, path reports from my breasts, a skin lesion or

See more A Good Per­sonal Health Record is Hard to Find

Blogs | Life as a Patient | Wednesday Web Sighting

A Blog About Pain

Frida Movie poster

The other evening I stayed up watching Frida, a 2002 movie about the Mexican artist Frida Kahlo. She sus­tained debil­i­tating spinal injury in a trolley accident as a teenager and had many surg­eries. Among other inter­esting things about her life, she had a tumul­tuous mar­riage to the then-​​​​more-​​​​famous muralist Diego Rivera, and if this movie be true, a brief affair with Leon Trotsky.

Her story is one of pain, psy­cho­logical and physical, and of a beau­tiful woman who uses art to express what that’s like. She’s aston­ishing, still, if you ask me.

Speaking of pain, or “algia” in Greek, as some of reviewed on Twitter yesterday -

Today I came upon a blog, Pain Suf­ferers Speak, put together by an on-​​​​line friend, Liz Hall. Liz main­tains a related Facebook page, a LinkedIn network for pain suf­ferers, runs Tweet chats @painspeaks and more. There’s a “Facebook Pain Family Group with NO judgment and NO crit­icism PLUS Uncon­di­tional Love plus 24–7 support for

See more A Blog About Pain

from the author | Life | Life in NYC

Happy Thanksgiving!

Macy's Thanksgiving Day Parade, Times Square, Nov 25, 2010, photo attribution: asterix611 (Flckr)

Dear Readers,

I’m going to take a break from blogging for the holiday and pos­sibly a while longer. For tomorrow, there’s lots in store, with family and old friends.

Macy’s Thanks­giving Day Parade, Times Square, Nov 25, 2010, photo attri­bution: asterix611 (Flckr)

 

I wish everyone a won­derful Thanks­giving and long weekend!

ES

Related Posts:Real Life Inter­rupts ML, In a Good Way!A Change of PaceCel­e­brating a Hol­i­dayAbout this WeekLive Every Week Like It’s Shark Week, Again!

Communication | Empowered Patient | Life | Social Media

New Math in a Digital World: Implications for Patients?

A neat story in today’s Times points to the para­dox­i­cally increasing smallness of our world, in the digital and, maybe, per­sonal sense. We’re getting nearer, one to one another. Or at least some of us are through Facebook and other technologies.

Our average degree of sep­a­ration is said to be only 4.74, according to a new study posted on-​​​​line yes­terday, where else but on Facebook? According to the Times report on the Facebook work:

… The researchers used a set of algo­rithms developed at the Uni­versity of Milan to cal­culate the average dis­tance between any two people by com­puting a vast number of sample paths among Facebook users. They found that the average number of links from one arbi­trarily selected person to another was 4.74. In the United States, where more than half of people over 13 are on Facebook, it was just 4.37.

The caveat, of course, is that the study examined connections

See more New Math in a Digital World: Impli­ca­tions for Patients?

Books | language | Life as a Doctor | Quote of the Day

'Cutting For Stone,' and Considering the Experience of Practicing Medicine

A short note on Cutting for Stone, a novel I’ve just read by Dr. Abraham Verghese. He’s an expert clin­ician and pro­fessor at Stanford. The author uses rich lan­guage to detail aspects of Ethiopian history, med­icine and quirks of human nature. The book’s a bit long but a page-​​​​turner, like some lives, taking a strange and some­times unex­pected course.

For today I thought I’d mention one passage that haunts me. It appears early on, when the pro­tag­onist, a man in middle age reflects on his life and why he became a physician:

My intent wasn’t to save the world as much as to heal myself. Few doctors will admit this, cer­tainly not young ones, but sub­con­sciously, in entering the pro­fession, we must believe that min­is­tering to others will heal our wound­edness. And it can. But it can also deepen the wound.

The point is, a physician may be immersed in his work in a manner that he is, in

See more ‘Cutting For Stone,’ and Con­sid­ering the Expe­rience of Prac­ticing Medicine

from the author | Life | Medical News | Music | Psychiatry

iPod Therapy - Why Not Prescribe It?

Yours truly, the author of Medical Lessons, is lis­tening to music while she writes. A live version of the Stones’ “Silver Train” has just come on, and she’s happily reminded of some­thing that hap­pened 30 years ago. Dis­tracting? Yes. Calming? Yes. Para­dox­i­cally helps to keep me on track? Yes.

My iPod keeps my mind from wan­dering further. And it lifts my mood.

And so here, on my blog, which is not peer-​​​​reviewed or any­thing like that, I put forth the medical concept of “iPod therapy.”

“When you’re weary, feeling small…” Music can help.

Today’s news reports that 1 in 5 Amer­icans take drugs for psy­chi­atric con­di­tions. That sounds like a lot to me, but I’m no phar­ma­ceu­tical sur­veyor. Of course many people need and benefit from medical help for depression and other mental illnesses.

But, in all seri­ousness, I wonder how many people might use music like a drug to keep them relaxed, happy, alert…

Why not pre­scribe music? It

See more iPod Therapy — Why Not Pre­scribe It?

Future of Medicine | health care delivery | Health IT | Life as a Patient | Patient-Doctor Relationship | Privacy

Getting My Photo Taken at a Medical Appointment

A funny thing hap­pened at my doctor’s appointment on Friday. I checked in, and after con­firming that my address and insurance hadn’t changed since last year, waited for approx­i­mately 10 minutes. A worker of some sort, likely a med-​​​​tech, called me to “take my vitals.”

She took my blood pressure with a cuff that made my germ-​​​​phobic self run for self-​​​​regulation, i.e. I stayed quiet and didn’t express my concern about the fact that it looked like it hadn’t been washed in years. I value this doctor among others in my care, and I didn’t want to com­plain about any­thing. Then the woman took my weight. And then she asked if she could take my picture, “for the hos­pital record.”

I couldn’t contain my won­dering self. “What is the purpose of the picture?” I asked.

“It’s for the record,” she explained. “For security.”

I thought about it. My picture is pretty much public domain at this point in my life,

See more Thoughts, on Getting My Photo Taken at a Medical Appointment

Communication | Homemaking | Life | Magazine | Nutrition | Public Health | Wednesday Web Sighting

Seven Powerful ‘Foodies’ on Forbes, Influence on Public Health?

Forbes image, Nov 2, 2011

Last week Forbes ran a photo-​​​​feature on the 7 most pow­erful ‘foodies’ in the world, according to author Michael Pollen.

Michael Pollen, Forbes, Nov 2011

So who made it onto the short list?* with anno­tation by ML:

1. Michelle Obama (First Lady, mother, organic farmer-​​​​in-​​​​chief and Let’s Move! fitness enthusiast)

2. Marion Nestle, Pro­fessor, New York Uni­versity (a neighbor, I’d like to meet!)

3. Josh Viertel, Pres­ident, Slow Food USA (need to learn more)

4. Will Allen, Urban Farmer (ditto)

5. Jack Sin­clair, Head of Grocery, Wal-​​​​Mart (who knew they’re the largest vendor of bananas in the US? I did! by lis­tening to the Brian Lehrer show, some time ago.)

6. Ken Cook, Exec­utive Director, Envi­ron­mental Working Group (sounds reasonable)

7. Mark Bittman, Columnist, The New York Times (he’s on Twitter).

It seems to this homemaker/​​mom/​​physician that this group may indeed influence how, where and what we eat. The public health impli­ca­tions of their work may prove unmea­surable, but be large and very real, nonetheless.

I rec­ommend

See more Seven Pow­erful ‘Foodies’ on Forbes, Influence on Public Health?

Breast Cancer | cancer awareness | cancer treatment | Life in NYC | Oncology (cancer) | Photography | Plastic and Reconstructive Surgery

Visiting the Scar Project Exhibit

On Friday I visited the Scar Project exhibit at Open­house, on Mul­berry Street just south of Spring. Pho­tog­rapher David Jay offers pen­e­trating, large, wall-​​​​mounted images of young people with breast cancer.

The photos reveal women who’ve have had surgery, radi­ation, recon­struction or partial recon­struction of the breasts. Some are strik­ingly beau­tiful. Some appear con­fused, others con­fident. Some look right at you, defiant or maybe proud. Some, post-​​​​mastectomy, adopt frankly or strangely sexual pos­tures. Others hide a breast, or turn away from the lens.

This col­lection is not for everyone. The photos of ravaged bodies of women with cancer might be upsetting, if not frankly dis­turbing, to some who look at them. Not everyone chooses to do so.

The women’s scars and expres­sions are telling. Though not rep­re­sen­tative, these images reflect wounds not often-​​​​shown in medical journals, or elsewhere.

Related Posts:More News On Lymph Nodes and Breast Cancer SurgeryNew NY State Law on Infor­mation for Women Under­going Mas­tec­to­myStudy Finds Wide Vari­ation in Reop­er­ation Rates after Lumpectomy for Breast CancerA Note on the Komen Fiasco1 in 70 Women Develops Breast Cancer Before Reaching 50 Years

Breast Cancer | cancer causes | Life as a Patient | Medical News | Women's Health

On Alcohol and Breast Cancer, Guilt, Correlations, Fun, Moderation, Doctors’ Habits, Advice and Herbal Tea

Few BC news items irk some women I know more than those linking alcohol con­sumption to the Disease. Joy-draining results like those reported this week serve up a double-​​​​whammy of guilt: first — that you might have developed cancer because you drank a bit, or a lot, or however much defines more than you should have imbibed; and second — now that you’ve had BC, the results dictate, or suggest at least, it’s best not to drink alcohol.

The problem is this: If you’ve had BC and might enjoy a glass of wine, or a mar­garita or two at a party, or a glass of whiskey, straight, at a bar, or after work with col­leagues, or when you’re alone with your cat, for example, you might end up feeling really bad about it — worse than if you had only to worry about the usual stuff like liver disease and brain damage, or if you could simply expe­rience pleasure like others, as they choose.

The

See more On Alcohol and Breast Cancer, Guilt, Cor­re­la­tions, Fun, Mod­er­ation, Doctors’ Habits, Advice and Herbal Tea

Communication | Homemaking | Life | Public Health

A Poster for Healthy Eating, 1940s Style

usda-food-wheel-1943

A curious diagram appeared in the most recent NEJM, in a per­spective on U.S. dietary guide­lines. It’s a USDA food wheel from the early 1940s. With Twitter-​​​​like style, it says: “For Health…eat some food from each group…every day!

The details are rich: “butter and for­tified mar­garine” con­stitute 1of the 7 groups. Further inspection-​​​​worthy, IMO.

Related Posts:Maybe We Should Teach Medical Stu­dents About Healthy LivingMyFoodA­Pedia, A Government-​​​​Sponsored Resource For Nutri­tional FactsCon­tem­plating Diet and Nutrition: A First Look at the USDA’s New Guide­linesA Good Outcome from Celebrity Chef Paula Deen’s Message about Diabetes?A Healthy New Year’s Res­o­lution with a Social Twist

Books | Empowered Patient | Ideas | Life as a Doctor | Life as a Patient | Medical Ethics | Patient Autonomy | Reviews

Two Minds on Medical Thinking

I read Your Medical Mind in hard cover, the old-​​​​fashioned way.

This book, on how patients think, offers a pen­e­trable, informed and anecdote-​​​​riddled dis­cussion of how people make health-​​​​related decisions. It’s co-​​​​authored by a husband and wife, Drs. Jerome Groopman and Pamela Hartzband.

The two are expe­ri­enced physi­cians: Groopman’s an oncol­ogist and familiar author; Hartzband’s an endocri­nol­ogist.  He says he’s a “believer” in modern med­icine, although his faith’s been chal­lenged since suf­fering untoward effects of back surgery. She’s a “doubter” and tends to wonder about other doctors’ direc­tives. One thing I like about the book is its dual authorship; under­lying its course lie com­mu­ni­cation, mutual respect and, in all like­lihood, some compromises.

The book resembles a travel nar­rative of sorts, starting with an overview of the planned medical deci­sions “tour.” The pair sets out to interview “scores of patients of dif­ferent ages, in dif­ferent parts of the country, of dif­ferent eco­nomic status, with different

See more Two Minds on Medical Thinking

Annals of Pink | Breast Cancer | cancer awareness | Life | Women's Health

Arizona Cheerleaders Cause Community Stir With Breast Cancer Awareness Shirts

Arizona Cheerleader shirt

This story, shared today by Debbie Woodbury, war­rants ML Annals of Pink inclusion:

The Arizona Republic reports on a divided com­munity in Gilbert, AZ. At issue is the high school cheer­leading team’s plan to wear pink tee shirts with the slogan: “Feel for lumps — save your bumps” on the back. The group’s intention was to raise awareness and funds for the Susan G. Komen Foundation. 

The school’s prin­cipal said no to the con­tro­versial outfits due to their “unac­ceptably sug­gestive” content.

What strikes me, among other inter­esting aspects of this story and what it reflects about BC awareness in 2011, is how the argu­ments (so needless!) about fundraising play out so dif­fer­ently, depending where you live and the news­papers you might read.

Related Posts:A Note on the Komen FiascoPink’s OK With MeKomen Update – Future Plans?A Con­fused Message on Breast Cancer In a Restaurant Win­dowPink Glove Dance, The Sequel

Homemaking | Infectious Disease

How to Prepare a Melon

With or without CDC updates on Lis­teria, and espe­cially when I travel to other coun­tries with less ES-​​​​friendly water systems, I pretty much always assume a fruit’s surface bears bac­teria that might make me sick.

A rough-​​​​skinned melon like can­taloupe is essen­tially unwashable. You can try, but here’s how I cut melon to reduce the odds that germs on the outside will enter my lunch:

1. Put the melon on a cutting board. Cut it into quarters with a sharp knife.

2. Scoop out the seeds in the center with a clean spoon.

3. Use another knife to shave off the exposed fruit edges of each section, starting from the fleshy fruit center and pressing downward toward the melon’s rind. Stop each cut before reaching the skin, so that the knife remains “clean.” This knife should touch only the fruit’s interior.

4. Carve out the melon slices from within each section, again without letting the knife touch the rind.

See more How To Prepare a Melon

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