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	<title>Comments for Medical Lessons</title>
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	<link>http://www.medicallessons.net</link>
	<description>on being a patient and a doctor, cancer, and communicating about health care</description>
	<lastBuildDate>Mon, 06 Feb 2012 20:24:01 +0000</lastBuildDate>
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		<title>Comment on Study Finds Wide Variation in Reoperation Rates after Lumpectomy for Breast Cancer by Ed</title>
		<link>http://www.medicallessons.net/2012/02/study-finds-wide-variation-in-reoperation-rates-after-lumpectomy-for-breast-cancer/comment-page-1/#comment-34791</link>
		<dc:creator>Ed</dc:creator>
		<pubDate>Mon, 06 Feb 2012 20:24:01 +0000</pubDate>
		<guid isPermaLink="false">http://www.medicallessons.net/?p=10996#comment-34791</guid>
		<description>This is a very real issue.  

My mother had 2 lumpectomy/reexcision surgeries for her BC and her margins remained positive and so rather than trying another breast conserving surgery, she opted that her third surgery was a mastectomy. Having not the greatest health insurance, she had to bear a 20% co-insurance burden for these 3 procedures which added to the depression she already had over &quot;her body turning on her.&quot;

I&#039;m curious as to the difference between her experience at a regional hospital versus what might be the outcomes of having a better pathology / surgical staff environment at a more metropolitan hospital?</description>
		<content:encoded><![CDATA[<p>This is a very real issue.  </p>
<p>My mother had 2 lumpectomy/reexcision surgeries for her BC and her margins remained positive and so rather than trying another breast conserving surgery, she opted that her third surgery was a mastectomy. Having not the greatest health insurance, she had to bear a 20% co-insurance burden for these 3 procedures which added to the depression she already had over “her body turning on her.”</p>
<p>I’m curious as to the difference between her experience at a regional hospital versus what might be the outcomes of having a better pathology / surgical staff environment at a more metropolitan hospital?</p>
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		<title>Comment on Cyberchondria Rising — What is the Term’s Meaning and History? by Elaine</title>
		<link>http://www.medicallessons.net/2012/01/cyberchondria-rising-what-is-the-terms-meaning-and-history/comment-page-1/#comment-33571</link>
		<dc:creator>Elaine</dc:creator>
		<pubDate>Wed, 01 Feb 2012 18:24:22 +0000</pubDate>
		<guid isPermaLink="false">http://www.medicallessons.net/?p=10943#comment-33571</guid>
		<description>Hi Carolyn, 
Thanks for your thoughts on this. You&#039;re right; if people know about stuff that can happen, they may be more fearful of it. But if patients don&#039;t learn and stick up for themselves, their concerns may be dismissed too readily. A hard balance -</description>
		<content:encoded><![CDATA[<p>Hi Carolyn,<br />
Thanks for your thoughts on this. You’re right; if people know about stuff that can happen, they may be more fearful of it. But if patients don’t learn and stick up for themselves, their concerns may be dismissed too readily. A hard balance -</p>
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		<title>Comment on Cyberchondria Rising — What is the Term’s Meaning and History? by Carolyn Thomas</title>
		<link>http://www.medicallessons.net/2012/01/cyberchondria-rising-what-is-the-terms-meaning-and-history/comment-page-1/#comment-33498</link>
		<dc:creator>Carolyn Thomas</dc:creator>
		<pubDate>Wed, 01 Feb 2012 15:37:55 +0000</pubDate>
		<guid isPermaLink="false">http://www.medicallessons.net/?p=10943#comment-33498</guid>
		<description>Hello Dr. S. Why do I suspect that the DSM-5 may not only include this &quot;disorder&quot; but will also recommend a full pharmaceutical protocol for treating it?  And, by the way, given that 80% of us are going online to seek out health information, why isn&#039;t every physician distributing a &quot;Best On the Web&quot; list of recommended credible websites to all of their patients?

I&#039;m of two minds on this important subject. My first concern is about misdiagnoses. We know, for example, that women heart patients are under-diagnosed (and under-treated even when appropriately diagnosed) compared to their male counterparts. 

So if doctors are reading this stuff from the AMA (and other sources), will they be even more likely than they already are now to treat our  complaints dismissively?  I was sent home from the ER in mid-heart attack (despite textbook symptoms) by an ER doc who told me confidently: &quot;You&#039;re in the right demographic for GERD!&quot; before patting me on the head and sending me away, feeling terribly embarrassed because I&#039;d just made such a fuss &quot;over nothing&quot;.

On the other hand, could I have been his 10th in a row middle-aged female patient with the same complaints that day, who had all shown up in his ER, frantic because they&#039;d been Googling their symptoms and self-diagnosing what wasn&#039;t actually there? 

On my blog, and in my frequent community presentations about women&#039;s heart health, I meet many women who are absolutely convinced that they are in imminent danger of heart attack, often despite weeks or months of futile (and expensive) diagnostics that say otherwise. At first, I&#039;m always alarmed that this woman&#039;s complaints may not be taken seriously (e.g. as seriously as you and I know that a male heart patient&#039;s complaints would be taken). But over time, I&#039;ve come to wonder if many of these women are indeed the notorious &quot;worried well&quot;, sucking up medical resources and doctors&#039; energy, so that by the time a person like me shows up in Emerg - a real live patient in mid-heart attack! - docs are more likely to blow me off, too. There&#039;s actually a name for this unfounded belief you&#039;re having a heart attack: &quot;cardiophobia&quot;. 

These people make it hard for those of us who are suffering bona fide cardiac events. It&#039;s hard enough for women, particularly women under 55, to be assessed appropriately with legitimate heart issues, without clogging up the ER with the &quot;worried well&quot;.

I wrote more about this dilemma in &quot;Catastrophizing: Why We Feel Sicker Than We Actually Are&quot; at http://myheartsisters.org/2011/01/05/catastrophizing/</description>
		<content:encoded><![CDATA[<p>Hello Dr. S. Why do I suspect that the DSM-5 may not only include this “disorder” but will also recommend a full pharmaceutical protocol for treating it?  And, by the way, given that 80% of us are going online to seek out health information, why isn’t every physician distributing a “Best On the Web” list of recommended credible websites to all of their patients?</p>
<p>I’m of two minds on this important subject. My first concern is about misdiagnoses. We know, for example, that women heart patients are under-diagnosed (and under-treated even when appropriately diagnosed) compared to their male counterparts. </p>
<p>So if doctors are reading this stuff from the AMA (and other sources), will they be even more likely than they already are now to treat our  complaints dismissively?  I was sent home from the ER in mid-heart attack (despite textbook symptoms) by an ER doc who told me confidently: “You’re in the right demographic for GERD!” before patting me on the head and sending me away, feeling terribly embarrassed because I’d just made such a fuss “over nothing”.</p>
<p>On the other hand, could I have been his 10th in a row middle-aged female patient with the same complaints that day, who had all shown up in his ER, frantic because they’d been Googling their symptoms and self-diagnosing what wasn’t actually there? </p>
<p>On my blog, and in my frequent community presentations about women’s heart health, I meet many women who are absolutely convinced that they are in imminent danger of heart attack, often despite weeks or months of futile (and expensive) diagnostics that say otherwise. At first, I’m always alarmed that this woman’s complaints may not be taken seriously (e.g. as seriously as you and I know that a male heart patient’s complaints would be taken). But over time, I’ve come to wonder if many of these women are indeed the notorious “worried well”, sucking up medical resources and doctors’ energy, so that by the time a person like me shows up in Emerg — a real live patient in mid-heart attack! — docs are more likely to blow me off, too. There’s actually a name for this unfounded belief you’re having a heart attack: “cardiophobia”. </p>
<p>These people make it hard for those of us who are suffering bona fide cardiac events. It’s hard enough for women, particularly women under 55, to be assessed appropriately with legitimate heart issues, without clogging up the ER with the “worried well”.</p>
<p>I wrote more about this dilemma in “Catastrophizing: Why We Feel Sicker Than We Actually Are” at <a href="http://myheartsisters.org/2011/01/05/catastrophizing/" rel="nofollow">http://myheartsisters.org/2011/01/05/catastrophizing/</a></p>
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		<title>Comment on A Good Outcome from Celebrity Chef Paula Deen’s Message about Diabetes? by Cynthia Bailey MD</title>
		<link>http://www.medicallessons.net/2012/01/a-good-outcome-from-celebrity-chef-paula-deens-message-about-type-2-diabetes/comment-page-1/#comment-32048</link>
		<dc:creator>Cynthia Bailey MD</dc:creator>
		<pubDate>Thu, 26 Jan 2012 17:20:04 +0000</pubDate>
		<guid isPermaLink="false">http://www.medicallessons.net/?p=10813#comment-32048</guid>
		<description>I just saw the movie Forks over Knives this weekend with a group of my friends and it&#039;s very provocative.  The premise is that our modern western beliefs and practices around food are killing us.  The physicians and researchers quoted in the documentary are our credible western science colleagues. Hello quinoa, carrots, beans and a primarily fat free plant based diet. Studies have shown that, independent of exercise, diet really matters. I wish Ms. Deen luck in tackling her disease and I&#039;d recommend a look at Forks over Knives.</description>
		<content:encoded><![CDATA[<p>I just saw the movie Forks over Knives this weekend with a group of my friends and it’s very provocative.  The premise is that our modern western beliefs and practices around food are killing us.  The physicians and researchers quoted in the documentary are our credible western science colleagues. Hello quinoa, carrots, beans and a primarily fat free plant based diet. Studies have shown that, independent of exercise, diet really matters. I wish Ms. Deen luck in tackling her disease and I’d recommend a look at Forks over Knives.</p>
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		<title>Comment on Shout Out: Dr. Val Jones Hosts Grand Rounds at USA Today by Eve Harris</title>
		<link>http://www.medicallessons.net/2012/01/shout-out-dr-val-jones-hosts-grand-rounds-at-usa-today/comment-page-1/#comment-31863</link>
		<dc:creator>Eve Harris</dc:creator>
		<pubDate>Wed, 25 Jan 2012 16:08:23 +0000</pubDate>
		<guid isPermaLink="false">http://www.medicallessons.net/?p=10874#comment-31863</guid>
		<description>Our little blog carnival is all grown up! Thanks, Val!</description>
		<content:encoded><![CDATA[<p>Our little blog carnival is all grown up! Thanks, Val!</p>
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		<title>Comment on A Good Outcome from Celebrity Chef Paula Deen’s Message about Diabetes? by Carolyn Thomas</title>
		<link>http://www.medicallessons.net/2012/01/a-good-outcome-from-celebrity-chef-paula-deens-message-about-type-2-diabetes/comment-page-1/#comment-31643</link>
		<dc:creator>Carolyn Thomas</dc:creator>
		<pubDate>Tue, 24 Jan 2012 02:42:24 +0000</pubDate>
		<guid isPermaLink="false">http://www.medicallessons.net/?p=10813#comment-31643</guid>
		<description>Hi Dr. S - like you, I&#039;ve never heard of Ms. Deen until her big news hit the media. There are a number of issues here, as you&#039;ve nicely documented.  But allow me to use the perspective from my 37+ year career  in public relations to help parse some of the issues that have made so many of us react with such surprising outrage over a person we don&#039;t even know. 

First, if Ms. Deen were just another 64-year old overweight, inactive smoker diagnosed with Type 2 diabetes, we wouldn&#039;t care.  But she isn&#039;t. Forbes magazine has estimated that Ms. Deen&#039;s annual income tops $4.5 million from her Food Network cooking show earnings, product endorsement contracts, and book/merchandise sales.  She is a hugely popular cooking show celebrity (what we in the public relations field would consider a person of &quot;affluence and influence&quot;.

Instead of attempting to use that influence for good, however, Ms. Deen stayed quiet about her Dx for three years until she&#039;d locked down her  lucrative drug company endorsement deal with Novo Nordisk (what we might consider an attempt to cash in on her medical condition).

When interviewed about her news, she attempted to downplay the entire issue of a high-fat, high-sugar Southern diet as a potential contributor to her diagnosis. As you wrote, Type 2 diabetes could largely be &quot;avoided by diet and lifestyle mod­i­fi­cation&quot;. You know it, I know it, I&#039;m guessing Ms. Deen knows it, too.  But instead, Ms. Deen told media interviewers that factors like stress and family history were likely to blame as part of a mysteriously vague and complex puzzle. You&#039;re right, her deep-fried cheesecake didn&#039;t cause our current epidemic of obesity, but it sure didn&#039;t help (what we might interpret as disingenuous).

And when the groundswell of public condemnation just refused to go away, Ms. Deen announced that she&#039;d suddenly decided to donate an undisclosed portion of her Novo Nordisk cash to the American Diabetes Association - a move that backfired dismally as critics saw this for what it seemed to be: a desperate &#039;too-little-too-late&#039; strategic move, no doubt recommended by her crisis communications team (what we might consider a &#039;Hail Mary&#039; attempt to turn down the relentless heat).

I like what food writer Kristin Wartman wrote recently about this phenomenon in &quot;Civil Eats&quot;:

“There are three main issues when it comes to the myth of personal responsibility about food choice, and they get at the root of our nation’s health crisis: 
1. the public’s confusion about nutrition
2. the lack of time and knowledge about real home cooking
3. the promotion of quick fixes like drugs, diet foods, and fads in lieu of addressing underlying causes

&quot;The Paula Deen diabetes story manages to hit on every single one of these issues.”

Keep up the great work...
cheers,
C.</description>
		<content:encoded><![CDATA[<p>Hi Dr. S — like you, I’ve never heard of Ms. Deen until her big news hit the media. There are a number of issues here, as you’ve nicely documented.  But allow me to use the perspective from my 37+ year career  in public relations to help parse some of the issues that have made so many of us react with such surprising outrage over a person we don’t even know. </p>
<p>First, if Ms. Deen were just another 64-year old overweight, inactive smoker diagnosed with Type 2 diabetes, we wouldn’t care.  But she isn’t. Forbes magazine has estimated that Ms. Deen’s annual income tops $4.5 million from her Food Network cooking show earnings, product endorsement contracts, and book/merchandise sales.  She is a hugely popular cooking show celebrity (what we in the public relations field would consider a person of “affluence and influence”.</p>
<p>Instead of attempting to use that influence for good, however, Ms. Deen stayed quiet about her Dx for three years until she’d locked down her  lucrative drug company endorsement deal with Novo Nordisk (what we might consider an attempt to cash in on her medical condition).</p>
<p>When interviewed about her news, she attempted to downplay the entire issue of a high-fat, high-sugar Southern diet as a potential contributor to her diagnosis. As you wrote, Type 2 diabetes could largely be “avoided by diet and lifestyle mod­i­fi­cation”. You know it, I know it, I’m guessing Ms. Deen knows it, too.  But instead, Ms. Deen told media interviewers that factors like stress and family history were likely to blame as part of a mysteriously vague and complex puzzle. You’re right, her deep-fried cheesecake didn’t cause our current epidemic of obesity, but it sure didn’t help (what we might interpret as disingenuous).</p>
<p>And when the groundswell of public condemnation just refused to go away, Ms. Deen announced that she’d suddenly decided to donate an undisclosed portion of her Novo Nordisk cash to the American Diabetes Association — a move that backfired dismally as critics saw this for what it seemed to be: a desperate ‘too-little-too-late’ strategic move, no doubt recommended by her crisis communications team (what we might consider a ‘Hail Mary’ attempt to turn down the relentless heat).</p>
<p>I like what food writer Kristin Wartman wrote recently about this phenomenon in “Civil Eats”:</p>
<p>“There are three main issues when it comes to the myth of personal responsibility about food choice, and they get at the root of our nation’s health crisis:<br />
1. the public’s confusion about nutrition<br />
2. the lack of time and knowledge about real home cooking<br />
3. the promotion of quick fixes like drugs, diet foods, and fads in lieu of addressing underlying causes</p>
<p>“The Paula Deen diabetes story manages to hit on every single one of these issues.”</p>
<p>Keep up the great work…<br />
cheers,<br />
C.</p>
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		<title>Comment on Regorafenib, an Experimental Pill Tested in Colon and Rectal Cancer Patients, on Conference Agenda by Mic</title>
		<link>http://www.medicallessons.net/2012/01/regorafenib-an-experimental-pill-tested-in-colon-and-rectal-cancer-patients-on-conference-agenda/comment-page-1/#comment-31348</link>
		<dc:creator>Mic</dc:creator>
		<pubDate>Sat, 21 Jan 2012 00:43:01 +0000</pubDate>
		<guid isPermaLink="false">http://www.medicallessons.net/?p=10801#comment-31348</guid>
		<description>&lt;&gt;

Don&#039;t grow fast??? Half the rego­rafenib-treated patients were DEAD in 6.4 months.  Do you want them to keep taking the drug after that??</description>
		<content:encoded><![CDATA[<p>&lt;&gt;</p>
<p>Don’t grow fast??? Half the rego­rafenib-treated patients were DEAD in 6.4 months.  Do you want them to keep taking the drug after that??</p>
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		<title>Comment on Regorafenib, an Experimental Pill Tested in Colon and Rectal Cancer Patients, on Conference Agenda by Alexander Harden</title>
		<link>http://www.medicallessons.net/2012/01/regorafenib-an-experimental-pill-tested-in-colon-and-rectal-cancer-patients-on-conference-agenda/comment-page-1/#comment-31090</link>
		<dc:creator>Alexander Harden</dc:creator>
		<pubDate>Thu, 19 Jan 2012 04:12:37 +0000</pubDate>
		<guid isPermaLink="false">http://www.medicallessons.net/?p=10801#comment-31090</guid>
		<description>Thank you. I am one of the tens of thousands waiting and hoping for new options. Your clear assessment is very helpful.</description>
		<content:encoded><![CDATA[<p>Thank you. I am one of the tens of thousands waiting and hoping for new options. Your clear assessment is very helpful.</p>
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		<title>Comment on Trending Facebook Group for a Beautiful and Bald Barbie Doll by Elaine</title>
		<link>http://www.medicallessons.net/2012/01/trending-facebook-group-for-a-beautiful-and-bald-barbie-doll/comment-page-1/#comment-31013</link>
		<dc:creator>Elaine</dc:creator>
		<pubDate>Tue, 17 Jan 2012 22:46:12 +0000</pubDate>
		<guid isPermaLink="false">http://www.medicallessons.net/?p=10760#comment-31013</guid>
		<description>Hi Emmy, 
Thanks for the link to the Grady Doctor post. Although the toys considered are distinct - one a cancer patient, the other a boy with dark skin - the issue of how toys influence kids&#039; perceptions of normalcy pertains to both.</description>
		<content:encoded><![CDATA[<p>Hi Emmy,<br />
Thanks for the link to the Grady Doctor post. Although the toys considered are distinct — one a cancer patient, the other a boy with dark skin — the issue of how toys influence kids’ perceptions of normalcy pertains to both.</p>
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		<title>Comment on Trending Facebook Group for a Beautiful and Bald Barbie Doll by emmy</title>
		<link>http://www.medicallessons.net/2012/01/trending-facebook-group-for-a-beautiful-and-bald-barbie-doll/comment-page-1/#comment-31009</link>
		<dc:creator>emmy</dc:creator>
		<pubDate>Tue, 17 Jan 2012 20:58:30 +0000</pubDate>
		<guid isPermaLink="false">http://www.medicallessons.net/?p=10760#comment-31009</guid>
		<description>When I first heard the idea I reacted with a knee jerk. Cancer is serious whether the child is suffering from it or watching a parent or sibling go through it. But like you after I considered it from the child who has cancer&#039;s prospective, it kind of really makes sence. Dr. Mannning from Reflections of Grady Doctor wrote a beautiful post about an exchange between her son and her regarding the way children feel about their toys. It can be found here (http://www.gradydoctor.com/2011/08/green-lantern.html)Her son&#039;s favorite toy had broken and in the exchange he explained that he liked that toy because because the toy looked like him it made him feel not left out. When I take his feelings into consideration I can understand why a bald barbie could be a boost for a seven year old going through chemo. Maybe we should all print out Dr. Manning&#039;s post and send it to Mattel. Those powerful words from a child may be what they need to see the benefits of the doll.</description>
		<content:encoded><![CDATA[<p>When I first heard the idea I reacted with a knee jerk. Cancer is serious whether the child is suffering from it or watching a parent or sibling go through it. But like you after I considered it from the child who has cancer’s prospective, it kind of really makes sence. Dr. Mannning from Reflections of Grady Doctor wrote a beautiful post about an exchange between her son and her regarding the way children feel about their toys. It can be found here (<a href="http://www.gradydoctor.com/2011/08/green-lantern.html" rel="nofollow">http://www.gradydoctor.com/2011/08/green-lantern.html</a>)Her son’s favorite toy had broken and in the exchange he explained that he liked that toy because because the toy looked like him it made him feel not left out. When I take his feelings into consideration I can understand why a bald barbie could be a boost for a seven year old going through chemo. Maybe we should all print out Dr. Manning’s post and send it to Mattel. Those powerful words from a child may be what they need to see the benefits of the doll.</p>
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