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Should People With Health Problems Talk About their Conditions?

Do you need to explain to the person on the checkout line or, say, a mother orga­nizing a bake sale, why your back hurts? Or why you need a seat on the bus?

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On Health and Discrimination in Hiring

From an article in today’s New York Times on hiring dis­crim­i­nation against people who smoke:

“There is nothing unique about smoking,” said Lewis Maltby, pres­ident of the Workrights Institute, who has lobbied vig­or­ously against the practice. “The number of things that we all do pri­vately that have neg­ative impact on our health is endless. If it’s not smoking, it’s beer. If it’s not beer, it’s cheese­burgers. And what about your sex life?”

I think he’s right, more or less, in a slippery-​​​​slope sort of way, seriously -

Lots to think about this weekend!

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Related Posts:An Ordinary DayShould People With Health Problems Talk About their Conditions?A Blog About Pain­Magic Johnson is Alive 20 Years after Announcing He Had HIVNew York City Mayor Bloomberg Pro­motes Healthy Lifestyle Choices

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I Feel Your Pain (not)

A tweet hit me on Sunday evening, from a stranger:

@Mibberz

I’m sad­dened by how many ADULTS can’t get their #rheum 2 under­stand the level of severity of their pain.What hope is there for my daughter?

I half-​​​​watched an on-​​​​line exchange about the issue, and then went about my family’s dinner preparations.

The message came from Amy Cun­ningham, who blogs about her daughter’s expe­rience with juvenile rheumatoid arthritis and uveitis to the starting tune of Van Morrison’s “Brown Eyed Girl.” I couldn’t bear the tracks that fol­lowed, playing auto­mat­i­cally and dis­jointedly in mul­tiple browser windows, so I shut them off. But I kept on thinking about the girl’s pain, and the mother’s despair.

I wasn’t alone in that. Turns out that Rheumatoid Arthritis Warrior Kelly Young (@rawarrior) was all over the matter. She’s got a Facebook dis­cussion going on the topic and a post today called Some Rheuma­tol­o­gists Don’t Understand

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The T.S.A. Screens Travelers Inside and Out

I’ll be staying near my home in Man­hattan this week. But if I did have plans to travel by air­plane for the holiday, I think I’d be appre­hensive about the new screening pro­ce­dures imple­mented by the Trans­portation Safety Authority (TSA).

My concern is not so much with the scanners…Rather, I’m worried about screening errors — false pos­itive and false neg­ative results, and about harms – physical and/​or emo­tional, that patients and people with dis­ability may expe­rience during the screening process.

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An Ordinary Day

If there’s one obvious thing I didn’t learn until I was well into my forties it’s this: Don’t let a day go by without doing some­thing you feel good about. This message is not unusual, cryptic or even inter­esting. It’s simple, really so trite you could find it in most any “how having cancer changed my life” book available in book­stores and on-​​line. Why say it again? Everyone knows we should relax and enjoy sunny weekend days like this. Because it’s a reminder to myself, as much as for some readers and maybe a few fledgling doctors out there. One of my…

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On Precious

Poster for Precious, the film based on the novel "Push," by Sapphire

This is my first film review, if it is that. I was tempted to write about Ethan Hawke, hema­tol­ogist among vam­pires in Day­breakers, but gore’s not my favorite genre. A main­stream choice would have been Har­rison Ford solving the enzyme defi­ciency of Pompe disease in Extra­or­dinary Mea­sures, but I didn’t get sucked in. I chose Pre­cious, instead. This luminous movie relates to the practice of med­icine everyday, big-​​time.

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