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Can Anyone Be a Patient Advocate?

Can a good doctor, or a nurse, or a physical ther­apist, or any other person employed by the health care system, serve as a patient advocate?

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How Much Do You Want Your Doctors To Say About Risks of Treatment?

doctor talking

This kind of pater­nalism, when a doctor assesses the risks and ben­efits, and spares the patient’s “knowing” seems anachro­nistic. But it may, still, be what many people are looking for when and if they get a serious illness. Not everyone wants a “tell me every­thing” kind of physician.

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Remembering a Warm-Hearted Patient

man with suitcase - flickr

When I was a res­ident I worked in a general med­icine clinic. One afternoon each week, I’d get more dressed than usual and split off from my inpa­tient team around noon to go see patients in another building, outside of the hospital.

flickr image, HikingArtist

Today, I’m reminded of a man I saw there and treated for two years. His name was Mr. Sun­shine.* The first time I met him, it was in the midst of a noisy, crowded and win­dowless waiting room.

“Mr. Sun­shine?” I called out, as loudly as I could from the recep­tionists’ desk. I’d skimmed through his chart including partial notes of a recent hos­pi­tal­ization. It was 1988, long before we stopped calling patients by their names in public areas. He stood up and greeted me with a broad smile. He shook my hand before I guided him to a smaller, quieter win­dowless room for

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Getting My Photo Taken at a Medical Appointment

A funny thing hap­pened at my doctor’s appointment on Friday. I checked in, and after con­firming that my address and insurance hadn’t changed since last year, waited for approx­i­mately 10 minutes. A worker of some sort, likely a med-​​​​tech, called me to “take my vitals.”

She took my blood pressure with a cuff that made my germ-​​​​phobic self run for self-​​​​regulation, i.e. I stayed quiet and didn’t express my concern about the fact that it looked like it hadn’t been washed in years. I value this doctor among others in my care, and I didn’t want to com­plain about any­thing. Then the woman took my weight. And then she asked if she could take my picture, “for the hos­pital record.”

I couldn’t contain my won­dering self. “What is the purpose of the picture?” I asked.

“It’s for the record,” she explained. “For security.”

I thought about it. My picture is

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The Immeasurable Value of Continuity of Care

Today I visited my internist for a checkup and flu shot. We talked about how I’m doing, and she examined me, and we dis­cussed what pro­ce­dures I ought have done and not done. She’s been my doctor since the summer of 1987, when I was an intern at the hospital.

We reviewed so much that has hap­pened in the interim.

How rare it is, now, to have a doctor who knows me. Con­ti­nuity in care is so valuable.

One of my greatest fears is being in the hos­pital again, and having hos­pi­talists – doctors who work full-​​​​time in the hos­pital – be the ones to see me each day, and make deci­sions about what I need. Yet I’m bracing for it because, well, that’s how it is, now.

From a health care admin­is­tration per­spective, I rec­ognize the value of del­e­gating inpa­tient care to physi­cians who are not my usual doctors.

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An 'Empowered Doctor' Website

Empowered doctor image

Today a new Twitter follow led me to the website of the Empowered Doctor. Of course, this domain had to happen: Back atcha!

There’s a tagline that reads: “Doctors, let Empowered Doctor help you connect with new patients. Call us @ 888…” The site offers expert com­mentary, videos and all kinds of smart stuff. Fea­tured doctors’ pro­files run along the right edge of the page; these appear like ads.

For the would-​​​​be inves­tigative reporters out there, the company lists a 212 phone and a Long Island City address. Go figure -

The Empowered Docs’ logo could use a lift, perhaps by any of the hun­dreds of graphic designers in NYC.

Site aside, the concept merits some thought.

Related Posts:Are Doctors Necessary?Can Anyone Be a Patient Advocate?How Much Do You Want Your Doctors To Say About Risks of Treatment?Remem­bering a Warm-​​​​Hearted PatientBoob­stagram Col­lects and Dis­plays Breast Photos, Says Aim is to Boost Cancer Awareness

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A Video About a Robot and a Patient

from the Examining Room of Dr. Charles

Since Watson won on Jeopardy, there’s been lots of talk of robots assuming doctors’ roles. Ten years into our future, machines with pro­grammed empathy and nuanced diag­nostic skills will solve diag­nostic dilemmas, deduce optimal treatment and make us well.

Yes­terday I found a new Xtra­normal video, this one crafted by Dr. Charles of his excellent Exam­ining Room blog, on Dr. Watson and the 7 Qual­ities of an Ideal Physician.

from the Exam­ining Room of Dr. Charles

Dr. Charles cites a 2006 Mayo Clinic Pro­ceedings review on what patients say are essential char­ac­ter­istics of a good physician: The ideal doctor is con­fident, empa­thetic, humane, per­sonal, forth­right, respectful, and thorough. In this clever, short movie crafted by Dr. Charles, the robot-​​​​doctor tries to demon­strate his capa­bility in each of these dimen­sions in his inter­action with a cartoon patient.

I hope the folks over at IBM, who are col­lab­o­rating with real medical

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May I Call You 'Doctor'?

Doctor is In Lucy Peanuts

Last week I con­sidered the rela­tionship between the Prince Albert and his speech ther­apist in The King’s Speech. One aspect I wanted to explore further is why the future king ini­tially insisted on calling the prac­ti­tioner “doctor.”

In real life, now, patient-​​​​doctor rela­tion­ships can be topsy-​​​​turvy. This change comes partly a function of a greater emphasis on patient autonomy, empow­erment and, basi­cally, the new­fangled idea that the people work “together, with” their physi­cians to make informed deci­sions about their health. It’s also a function of modern culture; we’re less formal than we were a century ago.

Patients enter the office with their own set of infor­mation and ideas about what they need. The recent Too-​​​​Informed Patient video high­lighted this issue, effectively.

Doctors are human, we are painfully aware in 2011. They make mis­takes and they some­times need to have dinner with their fam­ilies. They may even let us down.

When

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The King's Speech is Not Just About Stuttering

King George VI (Wikimedia Commons)

Over the weekend I went to see the King’s Speech. So far the film, fea­turing Colin Firth as a soon-​​​​to-​​​​be-​​​​King-​​​​of-​​​​England with a speech imped­iment, and Geoffrey Rush as his ill-​​​​credentialed but trusted speech ther­apist, has earned top critics’ awards and 12 Oscar nom­i­na­tions. This is a movie that’s hard not to like for one reason or another, at least most of the way through. It uplifts; it draws on history; it depends on solid acting.

What I liked best, though, is the work’s rare depiction of a complex rela­tionship between two imperfect, brave and ded­i­cated men. At some level, this is a movie about guys who com­mu­nicate without fix­ating on cars, football (either kind) or women’s physical fea­tures. Great! and, dear Hol­lywood moguls, can we have some more like this, please?

The film’s medical aspects are four, at least: the stut­tering, the attitude of physi­cians toward smoking, a closeted sibling

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Why It's a Good Idea to Get a Second Opinion, and Maybe a Third, But Rarely a Fourth

A few years ago I started writing a book on what it was like to be a cancer patient and an oncol­ogist. This morning I came upon this section on second opinions:

Is it OK to get a second opinion?

Def­i­nitely. And there’s no need to be secretive about it, or to worry about hurting the doctor’s feelings. Second opinions are routine in fields like oncology, and are often covered by insurance. Be up-​​​​front: any decent oncol­ogist can under­stand a cancer patient’s need to find a doctor who’s right for them, with whom they’re com­fortable making important deci­sions. And in dif­ficult cases, some spe­cialists appre­ciate the chance to discuss the sit­u­ation with another expert. So a second opinion can be ben­e­ficial to patients and physi­cians alike.

When things can get out of hand, though, is when patients start “doctor shopping.” For example, I’ve cared for some patients with leukemia who’ve

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Why the Term 'Patient' Is So Important In Health Care

roviding health care is or should be unlike other com­mercial trans­ac­tions. The doctor, or other person who gives medical treatment, has a special pro­fes­sional and moral oblig­ation to help the person who’s receiving his or her care. This respon­si­bility – to heal, hon­estly and to the best of one’s ability – over­rides any other com­mit­ments, or conflicts

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I Feel Your Pain (not)

A tweet hit me on Sunday evening, from a stranger:

@Mibberz

I’m sad­dened by how many ADULTS can’t get their #rheum 2 under­stand the level of severity of their pain.What hope is there for my daughter?

I half-​​​​watched an on-​​​​line exchange about the issue, and then went about my family’s dinner preparations.

The message came from Amy Cun­ningham, who blogs about her daughter’s expe­rience with juvenile rheumatoid arthritis and uveitis to the starting tune of Van Morrison’s “Brown Eyed Girl.” I couldn’t bear the tracks that fol­lowed, playing auto­mat­i­cally and dis­jointedly in mul­tiple browser windows, so I shut them off. But I kept on thinking about the girl’s pain, and the mother’s despair.

I wasn’t alone in that. Turns out that Rheumatoid Arthritis Warrior Kelly Young (@rawarrior) was all over the matter. She’s got a Facebook dis­cussion going on the topic and a post today called Some Rheuma­tol­o­gists Don’t Understand

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A Video About a Patient Who Might Have Too Much Information

too informed patient video

A link to a video, the Too Informed Patient came my way several times lately. You can find the curious clip on NPR’s Mar­ket­place site:

The Too Informed Patient from Mar­ket­place on Vimeo.

The skit depicts the inter­action between a young man with a rash and his older physician. The patient is an informed kind of guy – he’s checked his own medical record on the doctor’s website, read up on rashes in the Boston Globe, checked pix on WebMD, seen an episode of Gray’s Anatomy about a rash and, most inven­tively, checked i-​​​​Diagnose, a hypo­thetical app (I hope) that led him to the con­clusion that he might have epi­dermal necrosis.

Not to worry, the patient informs Dr. Matthews, who mean­while has been trying to examine him (“say aaahhh” and more), he’s eli­gible for an exper­i­mental pro­tocol. After some back-​​​​and-​​​​forth in which the doctor, who’s been quite courteous

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On People Who Receive Care From Physicians

…My point, which is really a question, is whether people who seek out or need health care should be referred to as con­sumers or cus­tomers. My gut feeling is that neither term is appro­priate. But then again, I don’t believe that med­icine can be or should be run as a business. Here’s why:

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Health Care Costs, Communication and Informed Choices

For those of you who’ve been asleep for the past year: the health care costs conundrum remains unsolved. Our annual medical bills run in the neigh­borhood of $2.4 trillion and that number’s heading up. Reform, even in its watered-​​down, red­dened form, has stalled. Despite so much unending review of medical expenses – attributed var­i­ously to an unfit, aging pop­u­lation, expensive new cancer drugs, inno­v­ative pro­ce­dures, insurance com­panies and big Pharma — there’s been sur­pris­ingly little con­sid­er­ation for patients’ pref­er­ences. What’s missing is a solid dis­cussion of the type and extent of treat­ments people would want if they were suf­fi­ciently informed of their medical options and cir­cum­stances. Maybe, if doctors would ask their adult patients how much care they really want, the price of health care would go down. That’s because many patients would choose less, at least in the way of tech­nology, than their doctors pre­scribe. And more care. What I’m talking about is the opposite of rationing. It’s about choosing.

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Are Doctors Necessary?

Ten years ago, my col­leagues and I squirmed in our swivel chairs when a few tech-​​savvy patients filed in bearing reams of articles they’d dis­covered, down­loaded and printed for our perusal. Some of us accepted these infor­ma­tional “gifts” warily, half-​​curious about what was out there and half-​​loathing the prospect of more reading. Quite a few com­plained about the changing infor­ma­tional dynamic between patients and their physi­cians, threatened by a per­ceived and perhaps real loss of control. How a decade can make a dif­ference. In 2008 over 140 million Americans…

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How to Avoid Death in the ICU

It was sometime in April, 1988. I was putting a line in an old man with end-​​stage kidney disease, cancer (maybe), heart failure, bac­teria in his blood and no con­sciousness. Prince was on the radio, loud, by his bedside. If you could call it that – the uncom­fortable, cur­tained com­partment didn’t seem like a good place for resting.

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Why Medical Lessons?

One of the things I liked best about prac­ticing med­icine is that I was con­stantly learning. Making rounds at seven in the morning on an oncology floor would be a chore if you didn’t get to examine and think and figure out what’s hap­pening to a man with leukemia whose platelets are dan­ger­ously low, or whose lym­phoma is responding to treatment but can’t take anymore med­icine because of an intense, burn-​​like rash. You’d have to look stuff up, sort among clues

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