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August Farewell: A Short Tale of a Peaceful Ending of Life

august farewell

I began reading August Farewell on the seventh day of that summer month. The date coin­cides with the beginning of David Hallman’s nar­rative of his lover’s death two years prior, and memory of their decades-​​​​long relationship.

A book by a gay Canadian Christian man might seem remote to a woman like me, who’s married, Jewish and lives in New York City. But Hallman con­nects, effec­tively; his story sticks and might influence the near-​​​​death arrange­ments of any person living in our modern world.

Hallman recounts the death of a man, his partner William (Bill) Conklin, who’d lived for years with mul­tiple scle­rosis and its debil­i­tating effects. In August, 2009 Conklin learned he had advanced pan­creatic cancer. The story works through the author’s 16 daily notes on meetings with doctors, nurses and pal­liative care spe­cialists, and visits with old friends and family.

The patient chose to die at home and his partner,

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Reducing Costs by Better Integration of Palliative Care in Cancer Treatment

We’re up to point 9 on the list – and nearing the end — on Bending the Cost Curve in Cancer Care from the May 26 NEJM. The sug­gestion from Drs. Smith and Hillner is that doctors better inte­grate pal­liative care into usual oncology care.

The authors start this important section well:

We can reduce patients’ fears of aban­donment by means of better-​​​​integrated pal­liative care. This topic is fraught with mis­un­der­standing given the ref­er­ences to “death panels” during the recent debate con­cerning health care legislation…

Here they’re on target: Some patients think, mis­takenly, that inclusion of pal­liative care in their treatment means their doctors are throwing in the towel. I’ve known some oncol­o­gists who think the same, who per­ceive pal­liative care as a last resort.

The truth is that pal­liative care, which aims to relieve symptoms, can be imple­mented at any point in the treatment of disease.

The authors go

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Oncologists Need to Get a Grip on Reality, and Talk about Dying

We’ve reached the second half of our dis­cussion on Bending the Cost Curve in Cancer Care. The authors of the NEJM paper, Drs. T. Smith and B. Hillner, go on to con­sider how doctors’ behavior influ­ences costs in Changing Atti­tudes and Practice. Today’s point on the list: “Oncol­o­gists need to rec­ognize that the costs of care are driven by what we do and what we do not do.”

In other words (theirs): “The first step is a frank acknowl­edgment that changes are needed.” A bit AA-​​​​ish, but fair enough -

The authors talk about needed, frank dis­cus­sions between doctors and patients. They emphasize that oncologists/​​docs drive up costs and provide poorer care by failing to talk with patients about the pos­si­bility of death, end-​​​​of-​​​​life care, and tran­si­tions in the focus of care from curative intent to palliation.

They review pub­lished findings on the topic:

In a study at our institution

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Limiting Chemotherapy in Patients Who Aren’t Responding

This is the sixth post on Bending the Cost Curve in Cancer Care, based on the 10 sug­ges­tions put forth by Drs. Smith and Hillner in the May 26 NEJM. We’re up to number 5 on the list for changing oncol­o­gists’ behavior: by lim­iting further chemotherapy to clinical trial drugs in patients who are not responding to three con­sec­utive regimens.

They’re right.

Giving one drug or com­bi­nation regimen, and then another, and another, and another, to cancer patients whose tumors resist mul­tiple reg­imens is more likely to cause harm than good. Oncol­o­gists need be real­istic with them­selves and with their patients, in a kindly way, when treat­ments fail.

Options to con­sider, besides chemo, include pal­li­ation (which can be started at any time, including before and during chemotherapy), alter­native approaches (such as hor­monal or immune-​​​​based therapy, for some tumors), hospice care and par­tic­i­pation in a clinical trial, as the authors suggest,

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A Blog on Hospice and Palliative Care

Pallimed Logo

Today’s Wednesday Web sighting is Pal­limed, a blog about hospice and pal­liative care. It’s 6 years old and growing strong.

The site speaks to the need (and why not a demand?) for this kind of care, and for infor­mation about of this widely mis­un­der­stood medical field.

Related Posts:On Genetics, News, Cancer, and Edu­cating DoctorsLow­ering Cancer Care Costs by Lim­iting Chemotherapy in Patients Who Aren’t RespondingWhat’s Next on the Big C? (Hope­fully a Second Opinion)Looking Ahead: 7 Cancer Topics for the FutureHow Well Do You Really Want to Know the “Red Devil?”

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Running 2 Lists That Might Lessen the Costs of Oncology Care

Recently the NEJM ran a Sounding Board piece on Bending the Cost Curve in Cancer Care. The authors take on this problem:

Annual direct costs for cancer care are pro­jected to rise — from $104 billion in 20061 to over $173 billion in 2020 and beyond.2…Medical oncol­o­gists directly or indi­rectly control or influence the majority of cancer care costs, including the use and choice of drugs, the types of sup­portive care, the fre­quency of imaging, and the number and extent of hospitalizations…

The article responds, in part, to Dr. Howard Brody’s 2010 pro­posal that each medical spe­cialty society find five ways to reduce waste in health care. The authors, from the Divi­sions of Hematology-​​​​Oncology and Pal­liative Care at Vir­ginia Com­mon­wealth Uni­versity in Richmond VA, offer two lists:

Sug­gested Changes in Oncol­o­gists’ Behavior (from the paper, ver­batim — Table 1):

1. Target sur­veil­lance testing or imaging to sit­u­a­tions in which a

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Health Care Costs, Communication and Informed Choices

For those of you who’ve been asleep for the past year: the health care costs conundrum remains unsolved. Our annual medical bills run in the neigh­borhood of $2.4 trillion and that number’s heading up. Reform, even in its watered-​​down, red­dened form, has stalled. Despite so much unending review of medical expenses – attributed var­i­ously to an unfit, aging pop­u­lation, expensive new cancer drugs, inno­v­ative pro­ce­dures, insurance com­panies and big Pharma — there’s been sur­pris­ingly little con­sid­er­ation for patients’ pref­er­ences. What’s missing is a solid dis­cussion of the type and extent of treat­ments people would want if they were suf­fi­ciently informed of their medical options and cir­cum­stances. Maybe, if doctors would ask their adult patients how much care they really want, the price of health care would go down. That’s because many patients would choose less, at least in the way of tech­nology, than their doctors pre­scribe. And more care. What I’m talking about is the opposite of rationing. It’s about choosing.

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How to Avoid Death in the ICU

It was sometime in April, 1988. I was putting a line in an old man with end-​​stage kidney disease, cancer (maybe), heart failure, bac­teria in his blood and no con­sciousness. Prince was on the radio, loud, by his bedside. If you could call it that – the uncom­fortable, cur­tained com­partment didn’t seem like a good place for resting.

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Looking Ahead: 7 Cancer Topics for the Future

Here’s my short list, culled from news­worthy devel­op­ments that might improve health, reduce costs of care and better patients’ lives between now and 2020, starting this year:

1. “Real” Alter­native Med­icine. By this I don’t mean infinitely-​​​​diluted home­o­pathic solu­tions sold in fancy bottles at high prices, but real remedies extracted from nature and some­times ancient practices.

A good example is cur­cumin, a curry ingre­dient from the root of the turmeric plant. We’re just starting to uncover this compound’s anti-​​​​cancer effects in humans. Another natural antidote that’s gaining ground is green tea; sci­en­tists are sifting through its com­po­nents to see how it reduces cell growth in some forms of leukemia and other tumors.

2. Chemotherapy Pills. Why get treatment through an intra­venous catheter if you can pop some pills instead? To be clear, some of the best and most effective cancer ther­apies require infusion. And just because a med­ication can be

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