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Information Overload

Amer­icans are con­suming unprece­dented amounts of infor­mation. Some small fraction of that – what we read, hear and see on TV — relates to health and illness. Today’s sources might include a story on cell phones and cancer, an NPR feature on autism or a com­mercial in which Sally Fields rec­om­mends Boniva, a drug for osteoporosis.

Does knowing more help us lead better, healthier lives?

In Bits, a NY Times blog on business, inno­vation, tech­nology and society, Nick Bilton recently described our vora­cious appetite for enlight­enment: 34 Giga­bytes or, depending on how you count, nearly 12 hours’ worth of data-​​gleaning per day from diverse channels like tele­vision, radio, the Web, text mes­sages and video games.

The Bits piece links to the Global Infor­mation Industry Center’s “How Much Infor­mation?” (HMI?) project that issued a December 2009 paper. The research center, based at the Uni­versity of Cal­i­fornia in San Diego, dates to 1960, when the Internet was, if any­thing, the­o­retical, and the concept of sharing computer-​​based data a matter of defense.

As best I can tell, the topics of “health” and “cancer” don’t figure promi­nently in the recent analysis. Maybe we don’t want to know much more on these sub­jects than we find in our doctors’ offices. But long runs of TV shows like “Marcus Welby, M.D.,” “ER” and “Scrubs” suggest oth­erwise. Indeed, many tune in reg­u­larly for a peek into the medical world, at least when fed in bits and pieces by ide­alized or heart-​​throb fic­ti­tious physi­cians with complex, warm and some­times hot per­sonal lives.

Nearly two-​​thirds of U.S. adults seek health-​​related infor­mation on the Web, says Susannah Fox of the Pew Research Center’s Internet & American Life Project. The agency tracks how North Amer­icans use the Internet for medical pur­poses and pub­lished an update, “The Social Life of Health Infor­mation” earlier this year.

Dr. Kevin Pho touched on the issue in a December 16 post on KevinMD:

To be sure, doctors and other health pro­fes­sionals don’t get every­thing right. But anyone can find infor­mation on the web, which can be of dubious accuracy.

Knowing what to do with that data can only come with expe­rience and training.

Fox, of the Pew Research Center, commented:

…one of our key findings is that most people use on-​​line health resources to sup­plement advice they get from doctors and other health pro­fes­sionals. After 10 years of researching this field, we have no evi­dence that the internet is replacing tra­di­tional sources of medical advice. Yes, many people are gath­ering and sharing health infor­mation online, but they are also dis­cussing it with friends, family, and health professionals.

I was con­sid­ering the matter last week, it happens, when I received an email from a former patient. He has hemochro­matosis, an inherited dis­po­sition to iron overload. His body is pro­grammed to take in excessive amounts of iron, which then might deposit in the liver, glands, heart and skin. He offered holiday greetings and men­tioned “some amazing videos on hema­tology and hemochro­matosis and genetics” he’d dis­covered on YouTube.

This is the future of med­icine, I realized. A patient accesses public data­bases, videos and other resources to learn about signs and symptoms of his illness, what foods to eat or best avoid, what med­i­cines and treat­ments he might need and if his con­dition is likely to affect others in his family.

Whether physi­cians want their patients to search the Internet for medical advice is beside the point. We’re there already, whether or not it’s good for us and whether what we find there is true.

The current issue is not about lim­iting non-​​professionals’ access to facts or fiction. Rather, it’s about how we might sift through so much material – whether that’s a CNN segment we take in, pas­sively, while running on a treadmill in the gym, or a detailed analysis of a new prostate cancer treatment pro­vided straight from an oncol­ogist – and digest it properly.

Perhaps infor­mation is a bit like iron, an essential nutrient that makes us stronger. To benefit from such a surplus, we’ve got to somehow identify, process and absorb what’s useful, what helps and doesn’t hurt.

Patients using internet health infor­mation without physician guidance

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