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Cyberchondria Rising - What is the Term's Meaning and History?

Yes­terday the AMA news informed me that cyber­chondria is on the rise. So it’s a good moment to con­sider the term’s meaning and history.

Cyber­chondria is an unfounded health concern that develops upon searching the Internet for infor­mation about symptoms or a disease. A cyber­chon­driac is someone who surfs the Web about a medical problem and worries about it unduly.

Through Wikipedia, I located what might be the first ref­erence to cyber­chondria in a medical journal: a 2003 article in the Journal of Neu­rology, Neu­ro­surgery, and Psy­chiatry. A section on the new diag­nosis starts like this: “Although not yet in the Oxford English Dic­tionary, the word ‘cyber­chondria’ has been coined to describe the excessive use of internet health sites to fuel health anxiety.” That aca­demic report links back to a 2001 story in the Inde­pendent, “Are you a Cyberchondriac?”

Two Microsoft researchers, Ryen White and Eric Horvitz, authored a “classic”

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Real-time Crowd-sourcing a Possible Case of Elephantiasis Nostras Verrucosa

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Yours truly is busy this week, working on another writing project. This morning she got word from the Happy Hos­pi­talist, via Google+, that a patient some­where needs help.

…Here is a young male with a greater than 10 year history of pro­gressive uni­lateral woody, nodular and odorous smelling skin changes of his calf. He has obstructive sleep apnea from sig­nif­i­cantly ele­vated body mass index…He has pain in his leg, which occa­sionally bleeds. There is no sig­nif­icant itching…

(For a full, dis­claimed description and an instructive image, see Happy’s post.)

This story, if true, pro­vides a good example of crowd-​​​​sourcing a diag­nostic dilemma. This isn’t a “game,” played by doctors on-​​​​line who write in to say what they think is wrong in a case already solved. Rather, this is how physi­cians might use extant tech­nology and free software for dif­ficult cases, in real time, when assis­tance is needed.

I’ve never seen

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Defining a Cluster of Differentiation, or CD

other CD

The two-​​letter acronym spec­ifies a mol­ecule, or antigen, usually on a cell’s surface…

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Crowd-Sourcing a Medical Puzzle

question mark

The Times ran an intriguing exper­iment on its Well blog yes­terday: a medical problem-​​​​solving contest. The chal­lenge, based on the story of a real girl who lives near Philadelphia, drew 1379 posted com­ments and closed this morning with pub­li­cation of the answer.

Dr. Lisa Sanders, who mod­erated the piece, says today that the first sub­mitted correct response came from a Cal­i­fornia physician; the second came from a Min­nesota woman who is not a physician. Evi­dently she rec­og­nized the condition’s man­i­fes­ta­tions from her expe­rience working with people who have it.

The public contest – and even the concept of using the word “contest” – to solve a real person’s medical con­dition interests me a lot. This kind of puzzle is, as far as I know, unprece­dented apart from the somewhat removed domains of doctors’ journals and on-​​​​line plat­forms intended for physi­cians, medical school problem-​​​​based learning cases, clinical patho­logical con­fer­ences (CPC’s) and

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Suggestions to Reduce Errors in Breast Cancer Pathology

A prominent article in yesterday’s New York Times con­siders some trou­bling problems regarding inac­curacy in breast cancer diag­nosis and pathology. The main point is that some women get needless, dis­fig­uring and toxic treat­ments after being told they have breast cancer when, it turns out, their con­dition was benign.

My main take on this sit­u­ation – which doesn’t just apply to breast cancer – is that, whenever pos­sible, patients should get a second opinion on biopsy results before under­going major treatment. The costs of a second pathology review is some­times covered by insurance, but some­times it’s not; either way, that’s money well-​​​​spent, espe­cially if the opinion is ren­dered by an appropriately-​​​​credentialed, expert pathol­ogist who works in a state-​​​​of-​​​​the-​​​​art facility.

From the doctor’s per­spective there’s respon­si­bility, too. Sur­geons shouldn’t lop off a woman’s breast without knowing that the pathology is real. Well-​​​​trained oncol­o­gists know they’re sup­posed to review the pathology, to make

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On Sergey’s Search (for a Cure for Parkinson’s Disease)

…This goes well beyond a new approach to finding a cure for Parkinson’s disease. This story, largely based in genomics and com­pu­ta­tional advances, reflects the power of the human mind, how the gifted son of two math­e­mati­cians who fell into a par­ticular medical sit­u­ation, can use his brains, intel­lectual and financial resources, and cre­ativity, to at least try to make a difference.

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The New Alzheimer’s Plaque Test (and early breast cancer detection)

Among my hundred ques­tions about this enter­prise — notwith­standing the ethics of per­forming clinical trials in hospice patients, as is related in the Times article – is this: does the dye harm the kidneys? As for how much it costs, that’s not said either. Because Alzheimer’s is a fairly common disease and memory loss an even com­moner con­dition, the potential demand for this mar­ketable diag­nostic method might be great. What are we thinking?

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Uncertainty Rules

Eyjafjallajökull, April 2010 (Wikimedia Commons, attr: David Karnå)

As pretty much anyone trav­eling in Europe this week can tell you, it’s some­times hard to know what will happen next. Vol­ca­nol­o­gists – the people most expert in this sort of matter – simply can’t predict what the spitfire at Eyjaf­jal­la­jokull will do next. It comes down to this: the volcano’s eruption could get better or it could get worse…

See more Uncer­tainty Rules (on Eyjaf­jal­la­jokull, volatility and a patient’s prognosis)