A Film and Story-Telling Festival Focuses on Disability

The program featured a dizzying spectrum of disability perspectives and concerns on film. It also included talks, photographs, parties and story-telling in presented by “The Moth.”

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Learning About Lou Gehrig, his Diagnosis, Disability and Pride

Once the athlete acknowledges his limitations, he is treated kindly and generously by his manager, teammates and fans.

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What to do about a Curved Spine? On Data, ‘BodyCast’ and New Directions

The NIH provides some information on scoliosis …Life is curved, usually, and maybe it’s better that way. Perhaps that was the Bocanegra’s point,

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“The Dallas Buyers Club” Takes on AIDS, Peer Patients, and Not Taking “No” for An Answer

Published trials can be flawed. Even if they’re well-analyzed, the findings can be hard to interpret when it comes to a single patient’s course and well-being. What’s a dying man to do?

Posted in Empowered Patient, Essential Lessons, Infectious Disease, Life, Movies, Patient Autonomy, ReviewsTagged , , , , , , , 2 Comments on “The Dallas Buyers Club” Takes on AIDS, Peer Patients, and Not Taking “No” for An Answer

Why I Like the (Absurd) Dancing in the OR Video

What Deb did, and I thank her for this, is offer an extreme example of patient-centered care. Among other things, she did everything possible to assure that the people caring for her perceive her as a human being who loves dancing.

Posted in Breast Cancer, Empowered Patient, Life as a Patient, Medical News, Patient-Doctor Relationship, Video, Women's HealthTagged , , , , , , , , , Leave a Comment on Why I Like the (Absurd) Dancing in the OR Video

A Little Bit of Good? on Dying, Communication, and Breaking Bad

Sometimes there’s no way to mend a person or a bad situation. You can’t deny reality. But if you’re still conscious and able to communicate, you may be able to lessen the damage you’ve done, or the pain someone else is experiencing, just a bit.

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A Case for Slower Medicine

Anger is an understandable reaction to a system that dehumanizes patients, that treats bodies as containers of billable ailments and broken parts. But most doctors go about their daily work with good intention – to heal.

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Visiting an Exhibit on Early AIDS at the New York Historical Society

Most doctors didn’t know what was going on. The young men weren’t sure either. There were rumors but also credible denials about a disease affecting the community…

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